by c4cfadmin | Jul 6, 2023 | News
CF Parent Update Jen’s top tips for the early years as a CF parent Last month I sat down with our newest Community Ambassador Jen to talk about the things she wishes she had known in 2019 when she became a CF parent. Becoming a CF Parent Jen’s daughter Aveline was...
by c4cfadmin | Jun 2, 2023 | News
Research Update Exciting advancement in personalised treatment Cure4CF is funding a cutting-edge study in personalised bacteriophage treatment in CF, so what’s it all about? What are bacteriophages? Bacteriophages or phages for short, are viruses that specifically...
by c4cfadmin | Dec 19, 2022 | News
Trikafta Update Pharmaceutical Benefits Advisory Committee (PABC) Trikafta Outcome Cure4CF will not rest until there is a cure for everyone with CF. We are thrilled the Pharmaceutical Benefits Advisory Committee has recommended the inclusion of Trikafta on the...
by c4cfadmin | Oct 27, 2020 | Get Active Events
This year the 2020 Knight Frank Point to Pinnacle challenge to reach the top of Mt Wellington is open to everyone – worldwide! Join us from wherever you are on the planet in taking on the 1271m elevation challenge via Strava between the 14th and 20th of November – you...
by c4cfadmin | Oct 11, 2020 | Near You
The 2021 Great Escape Oz is a 7-day rally starting in Nuriootpa (Barossa Valley, SA) and ending at Bonus Downs Station, QLD via Birdsville.The Great Escape Oz is a charity motoring event that seeks to make a difference to the lives of thousands of Australians...
by c4cfadmin | Oct 11, 2020 | Near You
Join our amazing friends in Whyalla for their Golf Day Fundraiser to find a cure for cystic fibrosis. Tickets available soon. Date: February / March...
by c4cfadmin | Oct 11, 2020 | Near You
The Great Escape Oz is a charity motoring event that seeks to make a difference to the lives of thousands of Australians suffering from Cystic Fibrosis by raising funds for the Cure4 Cystic Fibrosis Foundation. Car Lovers, Adventure Makers and Families in search of a...
by c4cfadmin | Oct 11, 2020 | Get Active Events
Exercise benefits us all, however for people with cystic fibrosis, it is particularly important. Exercise can help slow the rate of decline in lung function and clear sticky mucus from the lungs making it easier to breathe. It also improves physical bulk and strength...
by c4cfadmin | Oct 11, 2020 | Get Active Events
Our Cure4CF Army is already 30 strong! Be surrounded by thousands of runners from around the world in Australia’s largest and most prestigious Half Marathon event. The iconic course takes participants past the beautiful sights of Sydney’s harbour side and is open to...
by c4cfadmin | Oct 11, 2020 | Get Active Events
Join the Cure4CF Army in this year’s virtual City 2 Bay Fun Run! Led by CF Warrior and Cure4CF ambassador Emmah Money aka CF Mummy. Put on your war stripes and head into battle with us! This is a virtual event so register, pick your distance and complete your run or...
In May 2014, Teresa and her husband Harry’s world changed overnight. Their first child, Simon, was 17 months old when he was finally diagnosed with cystic fibrosis (CF). Until that moment, they had never even heard of CF, a rare inherited genetic disease. They didn’t know they were carriers of the defective CF gene. They didn’t have a name for what they had been seeing, only the quiet, growing sense that something wasn’t right.
In our 20th year as Cure4CF, and during CF Awareness Month, I have found myself reflecting more than usual on the ideas that stay with you long after you first come across them. There are some ideas in science that stay with you the moment you hear them. For me, bacteriophages were one of those.
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