fbpx
Harnessing Nature’s Warriors: The journey of bacteriophages from nature to patient

Navigating the start of school as a CF Parent

Cure4CF Update  Navigating the start of school as a CF Parent Last month I had a great time speaking with our Ambassador Jennifer Kozlowski who shared with me her top tips for navigating Aveline’s start to school this year. Enrol as early as possible. Jen acknowledges...
Harnessing Nature’s Warriors: The journey of bacteriophages from nature to patient

Life expectancy and the modulator era for CF

Cure4CF Update  Life expectancy and the modulator era for CF What does life expectancy mean? Life expectancy is a commonly used measure and reflects the mortality level of a population.   It is calculated from age specific death rates and measures how long a person is...
Harnessing Nature’s Warriors: The journey of bacteriophages from nature to patient

What is Aquagenic wrinkling and what does it mean in CF?

Cure4CF Update  What is Aquagenic wrinkling and what does it mean in CF?  Last year one of our ambassadors contacted me curious about aquagenic wrinkling they had observed.  I had never heard of the condition and was curious to learn more. Aquagenic wrinkling is rare...