by c4cfadmin | Oct 11, 2020 | News
Ambassador Update – Mae Our Youth Ambassador, Mae has kindly given us an update on how school has been for her this year as she completes year 12 and on going to her school formal. School as a CF patient has been crazy this year. It has been much more...
by c4cfadmin | Oct 7, 2020 | News
Fundraising Ideas Facebook Fundraiser – Create a fundraiser for Cure4 Cystic Fibrosis on Facebook. Set a goal and encourage your friends to support a great cause. Quiz Night – Organise a quiz night. Invite friends and family and organise a fun night with a quiz,...
by Oliver Prenton | Jul 1, 2020 | News
Jonathan Despinidic Takes Over Cure4CF Jonathan Despinidic Jonathan Despinidic, or JD, was looking at a very short life expectancy after being diagnosed with cystic fibrosis at the age of 13. Now at 33 years old, he is one of only 653 adults living with CF over the...
by Oliver Prenton | Jun 22, 2020 | News
Kristy Thomas Takes Over Cure4CF Kristy Thomas Kristy Thomas is a communications specialist and a Mum to a little boy with cystic fibrosis. She knows all too well the impact cystic fibrosis has on sufferers and their loved ones. Sharing her story through social media...
by Oliver Prenton | Jun 22, 2020 | News
Emmah Money Takes Over Cure4CF Emmah Money Emmah Money lives with the life-threatening lung disease Cystic Fibrosis and knows firsthand the challenges that come with this debilitating, invisible disease. With a life expectancy of just 37, she was given up for adoption...
by Oliver Prenton | Jun 2, 2020 | News
Jen, James and Aveline Kozlowski Take Over Cure4CF Jen, James and Aveline CF Mum Jen, her brother and Cure4CF Ambassador for NSW – James and cute as a button CF Warrior Aveline are taking over for the week! James is the school principal at Endeavour Sports...
by Oliver Prenton | Jun 2, 2020 | News
Ben Mudge Takes Over Cure4CF Ben Mudge Ben Mudge is originally from Belfast, Northern Ireland. He was born with cystic fibrosis, a genetic disease that affected his lungs, pancreas, and other organs. Growing up, Ben was a sporty child who loved to play around with...
by Oliver Prenton | May 20, 2020 | News
Mae Johnson Takes Over Cure4CF Mae Johnson My name is Mae Johnson, I am 16 years old. I was diagnosed with cystic fibrosis when I was born and even though it makes my life more challenging I am determined to live life to the fullest and achieve all of my dreams. I...
by Oliver Prenton | May 14, 2020 | News
Nathan Charles Takes Over Cure4CF Nathan Charles “As the only professional athlete playing a contact sport with cystic fibrosis, I’ve faced my share of obstacles. But I never let it define me. I now want to use my experiences to help others see what’s...
by Oliver Prenton | May 5, 2020 | News
Lauren Rowe Takes Over Cure4CF Lauren Rowe Lauren Rowe is the founder of Gifted Life, a CF Warrior, and a transplant recipient. She is taking over Cure4CF socials. You can find her over on Instagram @rejectinglaurenrowe Donate FollowFollow FollowFollow FollowFollow...
In May 2014, Teresa and her husband Harry’s world changed overnight. Their first child, Simon, was 17 months old when he was finally diagnosed with cystic fibrosis (CF). Until that moment, they had never even heard of CF, a rare inherited genetic disease. They didn’t know they were carriers of the defective CF gene. They didn’t have a name for what they had been seeing, only the quiet, growing sense that something wasn’t right.
In our 20th year as Cure4CF, and during CF Awareness Month, I have found myself reflecting more than usual on the ideas that stay with you long after you first come across them. There are some ideas in science that stay with you the moment you hear them. For me, bacteriophages were one of those.
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