Leann Tremul, CMV Group Foundation Community Ambassador VIC
Leann is a passionate advocate for raising awareness about cystic fibrosis, fundraising for a cure and supporting the cystic fibrosis community in Victoria. She heads up Cystic Fibrosis Geelong, a parent led group who fund research and local support services for people with cystic fibrosis.
“I am passionate about raising awareness and funds for a CURE for cystic fibrosis not only for my 14 year old daughter but for all with CF. I am close to many inspirational people in the CF community, their daily challenges make them remarkably resilient and I am humbled by their strength and their fight to live a normal life. I am honoured to become an ambassador for Cure4CF, an organisation focused solely on research and to continue to promote our fight for a cure.”
James Kozlowski, CMV Group Foundation Community Ambassador NSW
James is the school principal at Endeavour Sports College and has over 20 years’ experience in the education system. When his niece, Aveline was diagnosed with cystic fibrosis this year his shock and sadness quickly turned into a desire to take action.
“I soon discovered the great work of the Cure4 Cystic Fibrosis Foundation and set about raising money for their fight to find a cure. I am honoured to be selected as an ambassador as it gives me the opportunity to join their war against CF. I know that a cure is within reach and as long as I have a breath in my lungs, I’m #All4TheFight for CF Warriors.”
Angus Monfries, former AFL player
Cure4 Cystic Fibrosis is delighted to have former AFL star Angus Monfries as Patron of the Foundation. Having seen people close to him living with cystic fibrosis, Angus has a personal interest in, and understanding of the disease.
Of his appointment as our patron, Angus said, “CF is a debilitating illness that affects a great number of young Australians. A cure for CF would give those suffering from it today a brighter future and a fuller life”.
Olivia Wood, Cure4CF Ambassador
As our Community Ambassador for New South Wales Olivia is keen to shine a spotlight on our research program and help our fight for a cure.
Olivia knows all too well the challenges of living with cystic fibrosis. At 21 this CF Warrior has battled hard and is determined to find a way of creating a better life for herself and others living with CF.
“I’m excited to join the team at Cure4CF and am pleased to have found a fundraising group and community, solely working on finding a cure for the cystic fibrosis. Their work is vital, and I am keen to help accelerate their cause any way I can.”
Kristy Thomas, CMV Group Foundation Community Ambassador QLD
Kristy is a communications specialist and a Mum to a little boy with cystic fibrosis. She knows all too well the impact cystic fibrosis has on sufferers and their loved ones.
“In everything our family does, CF plays a central role. Our days are structured around chest physiotherapy, medications and avoiding infections. But in the midst of all that we try to create the most fulfilling and normal life that we can for our son. We are fighting to keep him well enough for long enough that when a cure is found, he will be able to reap the benefits. That is why I am delighted to be working with Cure4CF to build understanding of this disease. I want my voice to be a battle cry that calls others to join the fight against CF.”
Melly Haynes – Athlete
Melly is a talented athlete living with cystic fibrosis and continues to inspire those around her with her energy and enthusiasm to fight for a cure. In 2017 she ran the New York marathon in support of Cure4 Cystic Fibrosis and raised vital funds for cure focused research.
Jamie Sach, Penfolds Global Ambassador
In November 2015, Cure4 Cystic Fibrosis welcomed Jamie Sach as our newly appointed Ambassador. Jamie who most would agree has arguably one of the best jobs in the world as Global Ambassador for iconic South Australian wine Penfolds, is looking forward to putting his profile and voice to good use as he joins us in a very personal fight to find the cure for cystic fibrosis.
“Cystic fibrosis is a cruel genetic disease that greatly diminishes the quality of life of its sufferers and places onerous responsibilities on the families and carers that support those afflicted. For CF researchers to succeed they require substantial funding. I’m determined to do all I can to help raise the money required to accelerate research into an effective cure as quickly as possible. Together we can beat CF once and for all.”
Mae Johnson, Cure4CF Ambassador
Mae Johnson, is an inspirational young woman and future leader we are proud to have as an ambassador for Cure4 Cystic Fibrosis. Despite being diagnosed with cystic fibrosis at birth, Mae is determined to live life to the fullest and achieve all her dreams.
Mae enjoys playing netball, reading and singing. She really likes school and is completing year 12 in 2020, a challenging feat for anyone but more so for Mae. Mae has to work hard to keep up at school due to missing a lot of days because of hospital appointments and illness. When Mae finishes school she wants to be a brain surgeon and with Mae’s determination, we don’t have any doubt she will achieve this goal.
“I was delighted to become Cure4 Cystic Fibrosis’ first youth ambassador as I love to raise awareness and help to find a cure for my disease. There are a lot of people who have never heard of CF and if I can help tell people about the disease and how it affects my life then maybe, we can raise enough money to find a cure.”