by c4cfadmin | Jun 27, 2024 | News
Cure4CF Update Harnessing Nature’s Warriors: The journey of bacteriophages from nature to patient Phage Australia, led from Westmead Institute for Medical Research (WIMR) is utilising bacteriophages to fight antimicrobial resistant (AMR) infections; including...
by c4cfadmin | May 20, 2024 | News
Cure4CF Update Navigating the start of school as a CF Parent Last month I had a great time speaking with our Ambassador Jennifer Kozlowski who shared with me her top tips for navigating Aveline’s start to school this year. Enrol as early as possible. Jen acknowledges...
by c4cfadmin | Apr 30, 2024 | News
Cure4CF Update Life expectancy and the modulator era for CF What does life expectancy mean? Life expectancy is a commonly used measure and reflects the mortality level of a population. It is calculated from age specific death rates and measures how long a person is...
by c4cfadmin | Mar 14, 2024 | News
Cure4CF Update Did you know that one of our Cure4CF Ambassadors is an emerging scientist with an interest in bacteriophages? Mae has recently completed her degree in Forensic Science and has a keen interest in research, hoping to work as a forensic chemist when she...
by c4cfadmin | Feb 20, 2024 | News
Cure4CF Update What is Aquagenic wrinkling and what does it mean in CF? Last year one of our ambassadors contacted me curious about aquagenic wrinkling they had observed. I had never heard of the condition and was curious to learn more. Aquagenic wrinkling is rare...
by c4cfadmin | Nov 13, 2023 | News
Cure4CF Update Taste and bacterial infection in CF Our Ambassador Olivia Wood recently shared with me her observation that she can notice a change in taste when she has different lung infections. This made me curious and so I went to check out the research to see...
by c4cfadmin | Oct 4, 2023 | News
Cure4CF Update Phage therapy offers new hope for children with cystic fibrosis In a major advancement for personalised medicine, The Children’s Hospital at Westmead has launched a world-first clinical trial investigating the use of phage therapy to treat a chronic...
by c4cfadmin | Aug 14, 2023 | News
Cure4CF Update What makes Cure4CF Unique? The Cure4CF Foundation (Cure4CF) established in 2009 is part of the global community working to develop a cure for everyone with Cystic Fibrosis (CF). In Australia, we offer a unique approach to fundraising and supporting...
by c4cfadmin | Jul 6, 2023 | News
CF Parent Update Jen’s top tips for the early years as a CF parent Last month I sat down with our newest Community Ambassador Jen to talk about the things she wishes she had known in 2019 when she became a CF parent. Becoming a CF Parent Jen’s daughter Aveline was...
by c4cfadmin | Jun 2, 2023 | News
Research Update Exciting advancement in personalised treatment Cure4CF is funding a cutting-edge study in personalised bacteriophage treatment in CF, so what’s it all about? What are bacteriophages? Bacteriophages or phages for short, are viruses that specifically...
I was recently invited to take part in a clinical trial, and it made me stop and think about how many people might not really know what that means. Clinical trials are often mentioned in the news or by health professionals, but what happens in one—and why do people volunteer?
Cure4CF is proud to join forces with Lung Foundation Australia (LFA) to strengthen research into bronchiectasis – a chronic lung disease that affects many in our cystic fibrosis (CF) community.
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