by c4cfadmin | Mar 11, 2025 | News
Researcher Spotlight From Mumbai to Brisbane and Liver to Lungs: How Dr Divya Ramnath is tackling inflammation and infection in Cystic Fibrosis. Last month I had the chance to speak with Dr Divya Ramnath, one of the team working on the Think Zinc program this year....
by c4cfadmin | Feb 12, 2025 | News
Cure4CF Update “The number” – the changing landscape of lung function testing in cystic fibrosis When we visited the Mater in Brisbane last year as part of our tour with Dr Lucy Burr we visited the lung function laboratory. Here we met Respiratory Scientist Grace...
by c4cfadmin | Dec 19, 2024 | News
Cure4CF Update Courtney’s journey to motherhood as a CF woman Last month, I had the pleasure of speaking with Courtney, an amazing 34-year-old from Brisbane who was diagnosed with CF at 6 months old. Courtney talked to me about her CF and how Trikafta meant she is...
by c4cfadmin | Oct 3, 2024 | News
Cure4CF Update Gene therapy update – how close are we? The current landscape of gene therapy The first human genes were cloned in the 1970s with early studies commencing in the 1980s. The schematic on the right shows the progress in gene therapy over the last 3...
by c4cfadmin | Jun 27, 2024 | News
Cure4CF Update Harnessing Nature’s Warriors: The journey of bacteriophages from nature to patient Phage Australia, led from Westmead Institute for Medical Research (WIMR) is utilising bacteriophages to fight antimicrobial resistant (AMR) infections; including...
by c4cfadmin | May 20, 2024 | News
Cure4CF Update Navigating the start of school as a CF Parent Last month I had a great time speaking with our Ambassador Jennifer Kozlowski who shared with me her top tips for navigating Aveline’s start to school this year. Enrol as early as possible. Jen acknowledges...
by c4cfadmin | Apr 30, 2024 | News
Cure4CF Update Life expectancy and the modulator era for CF What does life expectancy mean? Life expectancy is a commonly used measure and reflects the mortality level of a population. It is calculated from age specific death rates and measures how long a person is...
by c4cfadmin | Mar 14, 2024 | News
Cure4CF Update Did you know that one of our Cure4CF Ambassadors is an emerging scientist with an interest in bacteriophages? Mae has recently completed her degree in Forensic Science and has a keen interest in research, hoping to work as a forensic chemist when she...
by c4cfadmin | Feb 20, 2024 | News
Cure4CF Update What is Aquagenic wrinkling and what does it mean in CF? Last year one of our ambassadors contacted me curious about aquagenic wrinkling they had observed. I had never heard of the condition and was curious to learn more. Aquagenic wrinkling is rare...
by c4cfadmin | Nov 13, 2023 | News
Cure4CF Update Taste and bacterial infection in CF Our Ambassador Olivia Wood recently shared with me her observation that she can notice a change in taste when she has different lung infections. This made me curious and so I went to check out the research to see...
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