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Categories
- Aiden’s Story: Research is the Answer!
Aiden’s story is a powerful example of how Australian research is transforming cystic fibrosis treatment. By participating in the ORIGIN-1 trial, Aiden helped generate the evidence that expanded national access to Trikafta for people with rare CFTR mutations. His journey highlights the life-changing impact of personalised medicine and community-driven research — opening doors for many Australians living with cystic fibrosis. - Penny’s Story: A Mother’s Perspective on Life with CF
Penny is a truly remarkable little girl. With her quick wit, sharp sense of humour and intelligence that keeps everyone on their toes, she has a way of filling a room with laughter. She loves netball, drawing and creating, and confidently tells anyone who will listen that she’s destined to be an A‑grade netballer. She also has very refined taste for her age, with sushi sitting firmly at the top of her favourites, especially when visiting Adelaide.
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