What is Aquagenic wrinkling and what does it mean in CF?

What is Aquagenic wrinkling and what does it mean in CF?

Cure4CF Update  What is Aquagenic wrinkling and what does it mean in CF?  Last year one of our ambassadors contacted me curious about aquagenic wrinkling they had observed.  I had never heard of the condition and was curious to learn more. Aquagenic wrinkling is rare...
What is Aquagenic wrinkling and what does it mean in CF?

Taste and bacterial infection in CF

Cure4CF Update  Taste and bacterial infection in CF Our Ambassador Olivia Wood recently shared with me her observation that she can notice a change in taste when she has different lung infections.  This made me curious and so I went to check out the research to see...
What is Aquagenic wrinkling and what does it mean in CF?

What makes Cure4CF Unique?

Cure4CF Update  What makes Cure4CF Unique? The Cure4CF Foundation (Cure4CF) established in 2009 is part of the global community working to develop a cure for everyone with Cystic Fibrosis (CF).  In  Australia, we offer a unique approach to fundraising and supporting...
What is Aquagenic wrinkling and what does it mean in CF?

Jen’s top tips for the early years as a CF parent

CF Parent Update  Jen’s top tips for the early years as a CF parent Last month I sat down with our newest Community Ambassador Jen to talk about the things she wishes she had known in 2019 when she became a CF parent. Becoming a CF Parent Jen’s daughter Aveline was...
What is Aquagenic wrinkling and what does it mean in CF?

Exciting advancement in personalised treatment

Research Update  Exciting advancement in personalised treatment Cure4CF is funding a cutting-edge study in personalised bacteriophage treatment in CF, so what’s it all about? What are bacteriophages? Bacteriophages or phages for short, are viruses that specifically...