Penny is a truly remarkable little girl. With her quick wit, sharp sense of humour and intelligence that keeps everyone on their toes, she has a way of filling a room with laughter. She loves netball, drawing and creating, and confidently tells anyone who will listen that she’s destined to be an A‑grade netballer. She also has very refined taste for her age, with sushi sitting firmly at the top of her favourites, especially when visiting Adelaide.

For many adults living with cystic fibrosis (CF), the idea of ageing is something previous generations never imagined. CF was once considered a life-limiting childhood disease, and families focused on helping children live as fully as possible in the time they had.