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An open letter campaign to open the conversation about cystic fibrosis (CF). May is Cystic Fibrosis Awareness Month. This year, we’re rallying our supporters to write an open letter addressed To Whom It May Concern, explaining one thing they wish the public knew about the disease and share it across as many channels as they can—including local media. |
An open letter campaign to open the conversation about cystic fibrosis (CF
May is Cystic Fibrosis Awareness Month. This year, we’re rallying our supporters to write an open letter addressed To Whom It May Concern, explaining one thing they wish the public knew about the disease and share it across as many channels as they can—including local media.
Connecting you with a story
This Cystic Fibrosis Awareness Month, our army of supporters will be sending in their personal stories to your newsdesk. If you receive an email titled To Whom it May Concern, we ask that you take the time to listen.
Should you wish to pursue a story that one of our community members sends you, we have compiled some resources below to help you craft your article or segment.
Thank you for your support of this important campaign.
Inclusions:
- We ask that any letters published include the To Whom It May Concern headline graphic and use the hashtag #All4TheFight
- We have provided a link to Cure4CF’s logos and assets which can be used here.
About cystic fibrosis.
- Cystic fibrosis (CF) is the most common inherited disease in the developed world, and it’s also the most expensive to treat.
- This is because it affects multiple organs including the lungs, gut, liver, pancreas and reproductive tissues—and each relies on a different doctor or specialist.
- CF causes thick mucus to build up and clog certain parts of the body such as the lung. The build-up is caused by an abnormal gene called CFTR (cystic fibrosis transmembrane regulator). It is often described as feeling like never having enough breath.
- There is currently no cure.
- Due to ongoing infections, tissue damage and lung disease, around half of people who have CF won’t make it to their 40th
- 1 in 25 people with Caucasian ancestry carry the defective CF gene, often without knowing it. And if both parents are carriers, there’s a 25% chance of their child being born with CF.
- Learn more about the disease.
About Cure4 Cystic Fibrosis.
Cure4 Cystic Fibrosis exists to find a cure. Established in 2009, our Foundation is a registered not-for-profit charity dedicated to raising funds for translational research—the kind that has the best chance of getting into the hands of those who need it most. To date, this has seen us support a range of innovative research projects with the potential to transform cystic fibrosis treatment globally, including gene and phage therapy.
Learn more about us.
Media enquiries
Email Suzy@Cure4CF.org or call 1300 131 480.
