Living with cystic fibrosis (CF) is a daily challenge that demands resilience, routine and ongoing care. CF is relentless, requiring people to manage complex treatments while juggling work, study, relationships and hobbies.

Thanks to advances in treatment and care, most Australians with CF are living longer, fuller lives. Still, every day includes a significant commitment to managing symptoms, preventing infections and maintaining health.

Daily treatments and routines

Most people with CF spend between 1 to 3 hours every day on treatments, which may include:

• Airway clearance techniques: Physiotherapy to help clear mucus from the lungs
• Inhaled medications: To clear mucus or fight infection
• Antibiotics: To prevent or treat lung infections 
• Enzyme replacement: Taken with meals to aid digestion and nutrient absorption
• Vitamin supplements: To replace fat-soluble vitamins lost due to digestive issues

These treatments are essential to slow disease progression and improve quality of life.

Hospital visits and ongoing care

People with CF often need regular check-ups with specialist teams, including respiratory physicians, dietitians, physiotherapists, endocrinologists and psychologists.

Hospital stays may be necessary for managing lung infections or complications. Some people with advanced CF require lung transplants.

Managing infection risk

Because CF affects the lungs, infections are a constant threat. People with CF must take strict infection control measures, such as:

• Avoiding crowded places and people with colds or flu
• Practising good hand hygiene
• Keeping up to date with vaccinations

The emotional and social impact

Living with CF can take a toll on mental health. Anxiety, depression and feelings of isolation are common challenges.

Support from family, friends, healthcare teams and peer networks are vital. Many people with CF find strength in connecting with others who understand their experience. However, because of the risk of cross-infection, people with CF are advised not to meet in person or spend time close to one another.

 Resilience in the face of relentlessness

Despite the challenges, people with CF show incredible strength and determination. Every treatment completed and every day lived well is a victory against a relentless condition.

Research that leads to better treatments and management is driving improved care, helping people with CF live longer, healthier lives — and bringing us closer to a future without CF.