James’ Story


Every four days a child is born with Cystic Fibrosis (CF).  From birth the treatment and management of CF is life–long and intensive and there’s currently no cure.

This is something Katherine and Chris know only too well. Read their full story here.

In his short life, their six-year-old son James has been admitted to hospital 17 times,  with each admission lasting around 14 days.  That’s 238 days spent in a hospital room away from his friends and family, his school and the things he treasures most.  He’s missed out on so many special moments over the years.

He even spent Christmas day in hospital. At a time when children should be surrounded by loved ones, full of excitement and thoughts of Father Christmas, it’s instead replaced by fear, uncertainty and worry.

Your donation today means we can fund the very best CF translational research across Australia.  Research that allows families like the Robins, to begin to imagine a future free of this terrible disease.

The more funds we can offer in grants to the research community, the more researchers can work on their projects, the faster they can make progress.

Dr. Noel Chambers, CEO – National Foundation for Medical Research and Innovation (NFMRI) says “We are excited to partner with Cure4 Cystic Fibrosis and manager and administer grants on their behalf.  Our point of difference is our focus on effective research supporting translation, which in turn will deliver benefits to the CF community.”

That’s why we need your help to get this research underway.

Click to donate now.


When James grows up, he wants to be a Ninja Warrior.  Right now, he’s a CF Warrior.

We’re fighting to change that and you can too.